Ed is now home and is doing well. He's obviously in a bit of discomfort, but considering what he has had done, he is doing miraculously well! I can't tell you how much it means to Ed that you and the rest of his gaming buddies are there for him. Your emails and messages lift his spirits, so thank you.
I did my first post op with my medical team and it went great! There was no cancer in the lymph nodes they tested and the bladder cancer was encapsulated. So I am "cancer free" now!!!
The surgery went very well, but due to all the scar tissue from previous surgeries there was a concern about blood supply, which in turn preventing them from creating a neo bladder.
I now have an ostomy bag, but I am cool with it. Cancer free and lots of positives of an ostomy bag vs neo bladder.